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Old 10th July 2008, 06:22 AM   #121
JennyJo
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Originally Posted by jli View Post
My guess is that if you provide the documents, they are convinced that these are fabricated. People like that are fact resistant.
Absolutely, very much so.

But we hope that the right information may help convince patients that they should not go to Simoncini.
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Old 10th July 2008, 06:34 AM   #122
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Originally Posted by ddt View Post
At the time I wrote that, I had the impression this was about a 5 years period. Don't know why. But that seems a quite reasonable timeframe, at least from committing the crime to the appeals procedure at the Supreme Court.

15 years to resolve it is indeed way too long, I agree.
I would also say 5 years is way to long to resolve such things.
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Old 10th July 2008, 06:37 AM   #123
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Originally Posted by JennyJo View Post
Someone in the Netherlands wrote a thesis on this; it appears the attitude changes when people become patients themselves.

I was in a scientific protocol as well, as were many of my fellow patients.

Many people have talked to me about how breast cancer patients become 'deformed' by their surgery, how 'degrading', 'inhuman' and 'humiliating' it is having to undergo 'the torture' of chemotherapy and the 'nightmare' of losing your hair. They thought I would have cried a lot because of it, but in fact I didn't cry at all, which surprised them no end.
Better just to let the die I suppose.

Cancer Treatment by Smith and Wesson I guess is what they want.
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Old 10th July 2008, 06:43 AM   #124
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Originally Posted by JennyJo View Post
Many people have talked to me about how breast cancer patients become 'deformed' by their surgery, how 'degrading', 'inhuman' and 'humiliating' it is having to undergo 'the torture' of chemotherapy and the 'nightmare' of losing your hair. They thought I would have cried a lot because of it, but in fact I didn't cry at all, which surprised them no end.
I remember when my adviser went through his bone marrow transplant, and we went to visit him in the oncology ward. Seeing all the cancer patients there, who were all bald and frail from their treatment, my response was not that it was "degrading", "inhuman", or "humiliating", it was, "They have HOPE."

These people are really sick, but now they have hope. I hope, with them!
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Old 10th July 2008, 07:34 AM   #125
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Originally Posted by pgwenthold View Post
I remember when my adviser went through his bone marrow transplant, and we went to visit him in the oncology ward. Seeing all the cancer patients there, who were all bald and frail from their treatment, my response was not that it was "degrading", "inhuman", or "humiliating", it was, "They have HOPE."

These people are really sick, but now they have hope. I hope, with them!
You bring tears to my eyes, thank you.
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Old 10th July 2008, 07:36 AM   #126
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Originally Posted by ponderingturtle View Post
Cancer Treatment By Smith And Wesson I Guess Is What They Want.
Lol! :-))
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Old 10th July 2008, 08:18 AM   #127
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Originally Posted by pgwenthold View Post
I remember when my adviser went through his bone marrow transplant, and we went to visit him in the oncology ward.
How is your advisor now? I hope he is well!
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Old 10th July 2008, 08:27 AM   #128
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Originally Posted by JennyJo View Post
Absolutely, very much so.

But we hope that the right information may help convince patients that they should not go to Simoncini.
Okay. How about showing them that Simoncinis perception of what a pathologist looks at is totally wrong.
I have just uploaded a scanned microscopy slide to the album on my profile page. This photograph demonstrates that the pathologist does not only sees the superficial part of the cancer. The photograph is of a coloncancer, and you can see that all parts of the tumor is presented to the pathologist. And so is the surroundings - including tissue deeper than the cancer.
If there were candida colonies within the cancer or in the surroundings they would without a shred of doubt appear before the pathologists eyes.
And I think the photograph illustrates that point. The cancer is the bluish mass on the left side of the photo. Feel free to copy and use the photo in the discussions. Should the discussion arise you can tell them that pathologists are not sponsored by pharmaceutical companies, as we donīt buy their products. And we are not big doctors either. And each and everyone of us most likely see far more cancers than Simoncini ever will.

Last edited by jli; 10th July 2008 at 08:39 AM.
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Old 10th July 2008, 09:51 AM   #129
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Thank you!
I'll post the url here when it's on the web!

You can see the tiniest bloodvessels etc. It's fascinating!
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Old 10th July 2008, 12:47 PM   #130
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Originally Posted by jli View Post
Okay. How about showing them that Simoncinis perception of what a pathologist looks at is totally wrong.

Here it is:
http://cryptocheilus.wordpress.com/2.../#comment-2550

Thanks very much!!!
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Old 10th July 2008, 01:08 PM   #131
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Originally Posted by JennyJo View Post
What's even worse is that many quacks keep perfectly curable people away from regular medicine. The woman I told you about, was diagnosed with breast cancer last year, just like I was. I underwent treatment (mastectomy and chemotherapy). I now have a very good prognosis, have new hair, feel fit and happy and have started working again. But she is dead. That is terrible I think.
(Bold mine)

That section brought tears to my eyes. I'm terribly sorry to hear your initial diagnosis, but it's really good to hear of the positive steps you've taken. You strike me as a very strong person. My brother-in-law was just diagnosed with brain cancer, and he and my sister are battling this incredible feeling of helplessness right now. Apparently the tumor is in an area of the brain where radiation treatments aren't able to reach. He's only 45
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Old 10th July 2008, 02:07 PM   #132
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Originally Posted by Nursefoxfire View Post
(Bold mine)

That section brought tears to my eyes. I'm terribly sorry to hear your initial diagnosis, but it's really good to hear of the positive steps you've taken. You strike me as a very strong person. My brother-in-law was just diagnosed with brain cancer, and he and my sister are battling this incredible feeling of helplessness right now. Apparently the tumor is in an area of the brain where radiation treatments aren't able to reach. He's only 45
I am so very sorry for your brother-in-law and your sister, I don't know what to say, these things are so very hard and difficult, I can only cry now. I've been so lucky I think and I always feel guilty towards others whose situation is worse.

That's why the quacks always make me so mad. What people need in a situation like your brother-in-law is good medication, good pain medication and emotional and psychological support for him and your sister.
They don't deserve false hope and deception and getting their savings stolen from them for worthless therapies in the last stage of their lives. I think that's just about the meanest thing a person can do.

Is there no chemotherapy for your brother, is radiation the only thing they can do?
I don't know what to say, what can one say, I'm so very sorry.
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Old 10th July 2008, 02:25 PM   #133
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Originally Posted by JennyJo View Post
You are very welcome. My understanding of dutch is unfortunately very limited (I havenīt even figured out what "nog" means (Saw that in a reply you gave to ddt)). So I probably wont understand much of the replies you will get. But should any questions about the photo or other aspects of "cancer anatomy" come up, feel free to ask.
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Old 10th July 2008, 02:35 PM   #134
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Jenny, they're trying chemo treatments now. He's starting to have bad seizures, though, and I think that's what's getting them so depressed. The growth is too far inside to be reached by surgical methods, and apparently if they used radiation, it would destroy too much of the healthy portion of his brain near the thalamus (please excuse any spelling / medical errors, I'm the furthest thing from a doctor).

One good thing is that some specialists from MD Anderson Hospital in Houston are now treating him, so at least he's in good, experienced hands. (MD Anderson, from what I've read, is one of the big cancer-research organizations, like the Mayo Clinic).

Hey, at least they're not drilling holes in his head and pouring in baking soda (sorry, a bit of morbid humor).
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Old 10th July 2008, 02:38 PM   #135
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jli, that slide was really NEAT!

Sad to say, it looked almost, dare I say? pretty. Maybe it's the purple dye you use on the specimens. Whatever it is, I looked at the cluster of veins and stuff and thought, "That would make a cool marbled effect for some bathroom tile!"
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Old 10th July 2008, 03:17 PM   #136
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[quote=Nursefoxfire;3850390]
Quote:
jli, that slide was really NEAT!
Sad to say, it looked almost, dare I say? pretty.
Thanks. Now you know that pathology isnīt that disgusting as rumour has it. At one point I actually considered posting the corresponding "macrophoto" showing that the tumor IS white. But I thought it was a bit too unesthetic for public view.
Quote:
Maybe it's the purple dye you use on the specimens.
Whatever it is,
Itīs a combintion of hematoxylin and eosin. We use that on everthing.
Quote:
I looked at the cluster of veins and stuff and thought, "That would make a cool marbled effect for some bathroom tile!"
I can honestly say that I never thought of that.
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Old 10th July 2008, 03:59 PM   #137
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JennyJo - On this link you'll find the article of the Corriere della Sera in Italian:
http://archiviostorico.corriere.it/m...60521029.shtml

Corriere della Sera is the most popular and reliable daily newspaper in Italy.

I read somewhere in a thread: "Never argue with idiots. They bring you down to their level and beat you with experience". These idiots are everywhere and, believe me, I'm very proud when they say to me criminal or similar.
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Old 10th July 2008, 04:05 PM   #138
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Sorry, there must be something wrong with the link. Try on Google with the words: Medico condannato: omicidio colposo

It means. Physician condenmed: manslaughter
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Old 11th July 2008, 02:36 AM   #139
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Originally Posted by Phytotherapist View Post
Sorry, there must be something wrong with the link. Try on Google with the words: Medico condannato: omicidio colposo

It means. Physician condenmed: manslaughter
Thanks!!

Here it is now:
http://cryptocheilus.wordpress.com/2...atje/#comments
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Old 11th July 2008, 02:38 AM   #140
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[quote=jli;3850483 At one point I actually considered posting the corresponding "macrophoto" showing that the tumor IS white. But I thought it was a bit too unesthetic for public view.
[/QUOTE]

Don't worry, we're up to it!
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Old 11th July 2008, 02:44 AM   #141
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Originally Posted by jli View Post
You are very welcome. My understanding of dutch is unfortunately very limited (I havenīt even figured out what "nog" means (Saw that in a reply you gave to ddt)).
"Nog" has various meanings.

It means 'still', as in:
Is it still raining/regent het nog?

It means 'any', as in:
Is there any chocolate left/is er nog chocola?

It means as much as 'btw, or 'as well' as in:
BTW, thanks for the link/thanks for the link as well/nog bedankt voor de link.

We were on holiday in Denmark two years ago and I didn't understand a word of what people were saying! I can understand the written text reasonably well sometines, but when people start talking I get lost completely!
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Old 11th July 2008, 06:10 AM   #142
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Originally Posted by JennyJo View Post
Don't worry, we're up to it!
Okay! I take that as a request.
It is in the album now. The slice is what it looks like after two days of fixation in something called fomalin. The fixation procedure changes the colour of the bowel wall. But the cancer retains its white colour. You should be able to compare the slice to what is seen on the microscopy slide. If you have any questions regarding the photo(s) - donīt hesitate to ask.

Originally Posted by JennyJo View Post
"Nog" has various meanings.

It means as much as 'btw, or 'as well' as in:
BTW, thanks for the link/thanks for the link as well/nog bedankt voor de link.
In danish that would be:
Forresten, tak for linket/Også tak for linket.

No wonder why I couldnīt understand "Nog".

Quote:
We were on holiday in Denmark two years ago and I didn't understand a word of what people were saying! I can understand the written text reasonably well sometines, but when people start talking I get lost completely!
Spoken dutch is also completely incomprehensible in my ears, but I recognize many written dutch words. But not enough for me to be able to follow the discussion on chryptocheilus. But it seems that you have recieved some positive responses. It would be cool if you actually succeed in convincing some of the "openminded" that Simoncinis theory is rubbish. The fanatic followers are probably out of pedagogical reach.

Last edited by jli; 11th July 2008 at 06:58 AM.
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Old 11th July 2008, 07:25 AM   #143
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The link on Cryptocheilus has been copied & pasted to about 20 medblogs and forums, so don't worry, you WILL be famous!
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Old 11th July 2008, 07:47 AM   #144
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Originally Posted by JennyJo View Post
The link on Cryptocheilus has been copied & pasted to about 20 medblogs and forums
Wow
Quote:
so don't worry, you WILL be famous!
Help
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Old 11th July 2008, 07:48 AM   #145
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Originally Posted by jli View Post
It would be cool if you actually succeed in convincing some of the "openminded" that Simoncinis theory is rubbish. The fanatic followers are probably out of pedagogical reach.
The fanatic followers are speechless at the moment. That has never happened before. Some of them have received bans. That also has never happened before.
I'm preparing a text about Simoncini to place on a number of websites and blogs in the USA as well.
After that, I will go and read an uplifting book, to cleanse my mind a bit from this dreary quack business.
You have helped us enormously and we're all very very grateful!
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Old 11th July 2008, 07:59 AM   #146
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Originally Posted by jli View Post
Wow

Help
We'll protect you!
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Old 11th July 2008, 08:04 AM   #147
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Originally Posted by JennyJo View Post
The fanatic followers are speechless at the moment. That has never happened before. Some of them have received bans. That also has never happened before.
I'm preparing a text about Simoncini to place on a number of websites and blogs in the USA as well.
After that, I will go and read an uplifting book, to cleanse my mind a bit from this dreary quack business.
You have helped us enormously and we're all very very grateful!
WOW, That is really amazing. Thank you for your feedback. It is a real uplifting post. Iīd be happy to supply you with more ammunition if I can. But you do deserve a break from all this. Enjoy it.
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Old 11th July 2008, 10:52 AM   #148
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Originally Posted by JennyJo View Post
We'll protect you!
Then I will fear nothing.
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Old 11th July 2008, 11:17 AM   #149
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Originally Posted by JennyJo View Post
How is your advisor now? I hope he is well!
He had the bone marrow transplant in 1993. A few of us grad students went to donate platelets for him. Sadly, he died in 1998 from non-Hodgkins lymphoma.

I still donate platelets on occasion.
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Old 11th July 2008, 12:00 PM   #150
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I'll help aswell
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Old 11th July 2008, 01:00 PM   #151
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Originally Posted by pgwenthold View Post
He had the bone marrow transplant in 1993. A few of us grad students went to donate platelets for him. Sadly, he died in 1998 from non-Hodgkins lymphoma.

I still donate platelets on occasion.
That is sad indeed, I'm so sorry.
It's probably very stupid, but I never knew one could donate platelets. I'd like to do this myself, but I don't know if I can because I had cancer.
I'll go and find out next week.
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Old 11th July 2008, 01:04 PM   #152
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Originally Posted by puma73 View Post
I'll help aswell
Hey Puma, welcome on the best forum in the world!

Liefs,
JJ
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Old 11th July 2008, 03:14 PM   #153
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Originally Posted by jli View Post
Okay! I take that as a request.
It is in the album now. The slice is what it looks like after two days of fixation in something called fomalin. The fixation procedure changes the colour of the bowel wall. But the cancer retains its white colour. You should be able to compare the slice to what is seen on the microscopy slide. If you have any questions regarding the photo(s) - donīt hesitate to ask.
You have a great job I think! The picture is fascinating and frightening at the same time. It seems like quite a big tumor. Or does it only seem that way?

I also read somewhere that with some cancers, when the primary tumor shrinks or is removed, the metastases start to grow faster and my oncologist said that with some cancers this is indeed the case. Creepy, as if it's capable of thinking.

On this website is a photograph of a clump of breast cancer cells (you'll probably know these pictures):
http://images.wellcome.ac.uk/
You click on Images, then on Galleries, it is the first photograph. I saw it for the first time in our newspaper and was shocked by the havoc the cancer creates, it looks so ruthless and agressive.

There also is a photograph of a single breast cancer cell, but I don't understand which is the cancer cell. The big pointed thing?? I'm puzzled by it every time I look at it.

Last edited by JennyJo; 11th July 2008 at 03:36 PM.
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Old 12th July 2008, 12:38 AM   #154
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Originally Posted by JennyJo View Post
You have a great job I think! The picture is fascinating and frightening at the same time. It seems like quite a big tumor. Or does it only seem that way?
Thank you. Actually this tumor is one of the smaller ones. If you look at the microscopy slide you can see there is a small red brim just outside the tumor. This means it hasnīt penetrated the rectal wall yet (It is a rectal tumor and not a colon tumor as I wrote earlier). In Denmark such a low stage tumor is treated with surgery alone, but I think they still use radiotherapy before the operation in Holland.

Quote:
I also read somewhere that with some cancers, when the primary tumor shrinks or is removed, the metastases start to grow faster and my oncologist said that with some cancers this is indeed the case. Creepy, as if it's capable of thinking.
I donīt have first hand knowledege of this - so I can only speculate. It is not uncommon for a distant metastasis to appear years after surgery. To me that does not sound like faster growth. On rare occasions we do see metastatic disease develop in the course of preoperative radiochemotherapy, but it is difficult say if this is because of tumor shrinkage or simply a property of the metastatic cells themselves. If distant metastasis are detectable at the time of surgery, we really donīt know how long they have been on their way. And these patients will (in general) be offered chemotherapy (or resection if possible).

Quote:
On this website is a photograph of a clump of breast cancer cells (you'll probably know these pictures):
http://images.wellcome.ac.uk/
Thank you. I havenīt seen those before. They are so called scanning electro micrographs. This is a special technique that we donīt use in routine diagnostics. Iīm at home for the weekend, so Iīm unable to upload microscopy photos to the album until monday. But this link will show you the difference.
Breast cancer microscopy
Quote:
There also is a photograph of a single breast cancer cell, but I don't understand which is the cancer cell. The big pointed thing?? I'm puzzled by it every time I look at it.
Yes. Itīs the big blue pointed cell. Cancer cells come in all shapes and sizes. You can probably see this in the clump of breat cancer cells too. As I said this is not the method we use for routine diagnostics. But the cup shaped cell sitting leftmost on the tumorcell looks like a red blod cell. That may give you and idea of the size of this particular cancer cell.
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Old 12th July 2008, 02:16 PM   #155
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@ jli,

Quote:
But this link will show you the difference.
Breast cancer microscopy
I've been immersed in this album for the greater part of the day. It is so fascinating and the work you do, it is so important, it seems to me you have to be painstakingly precise and extremely alert not to miss anything, I am very impressed.

I found it emotional as well. The way a cancer grows, that it doesn't stop at anything, watching these photographs I more than once thought how lucky I have been that mine was discovered when still in an early stage, for the photographs clearly show that this really can and will kill you.
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Old 13th July 2008, 06:41 AM   #156
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Originally Posted by JennyJo View Post
@ jli,
I've been immersed in this album for the greater part of the day. It is so fascinating and the work you do, it is so important, it seems to me you have to be painstakingly precise and extremely alert not to miss anything, I am very impressed.
Thank you for your very kind words. It is my impression that not many outside the medical field understand the importance of good pathology.

Quote:
I found it emotional as well. The way a cancer grows, that it doesn't stop at anything, watching these photographs I more than once thought how lucky I have been that mine was discovered when still in an early stage, for the photographs clearly show that this really can and will kill you.
Very true. But even if cancer is a potentially lethal disease it is often curable - also in more advanced stages. For instance some advanced rectal cancers recieve radiotherapy before the operation. Some of these will have disappeared completely by the time of the operation.
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Old 13th July 2008, 07:51 AM   #157
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@ jli

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Old 7th August 2008, 12:22 PM   #158
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Originally Posted by jli View Post
I donīt have first hand knowledege of this - so I can only speculate. It is not uncommon for a distant metastasis to appear years after surgery. To me that does not sound like faster growth.
I vaguely recall a hypotheses and a bit of research that some tumors emit a suppressive chemical that inhibits their "seedlings". Remove the big tumor and the seedlings are not inhibited any more. Result is more tumors.

But this bicarb treatment ... aside from putting the patient's pH balance way out of whack (causing neurological symptoms, maybe permanent damage), killing tumor cells by the abnormal pH and releasing the contents (massive cell death is not good for you) ... what other lethal effects would it have?
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Old 7th August 2008, 11:29 PM   #159
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Baking soda helps because it turns your body alkaline, take it in a glass of water with a little honey. Peroxide 3% 10mil in water daily ups the oxygen levels, B17 targets cancer cells 6 apricot kernels daily. If your PH is on the alkaline side the cancer will go away. Chemo is evil. Cancer is big business. We also treat our own skin cancers with petty spurge juice. Have a friend that a smart woman has brought back from terminal cancer, she tip bodies alkaline with spirulina with grape seed oil massage plus some of the above.
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Old 8th August 2008, 04:10 AM   #160
Professor Yaffle
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Originally Posted by Old Bob View Post
Baking soda helps because it turns your body alkaline, take it in a glass of water with a little honey. Peroxide 3% 10mil in water daily ups the oxygen levels, B17 targets cancer cells 6 apricot kernels daily. If your PH is on the alkaline side the cancer will go away. Chemo is evil. Cancer is big business. We also treat our own skin cancers with petty spurge juice. Have a friend that a smart woman has brought back from terminal cancer, she tip bodies alkaline with spirulina with grape seed oil massage plus some of the above.
Yes, Bob. You are sooooooooo not wrong at all.
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